After four months, four hotels, and four hospital stays we returned to Tucson from Boston. My husband, Simon, now has a reinforced trachea that was meticulously sewn by a very gifted and knowledgeable thoracic surgeon, Dr. Sidhartha Gangadharan. He was treated and followed throughout these months by an equally gifted and knowledgeable interventional pulmonologist, Dr. Adnan Majid. We are so grateful for their brilliance, their watchfulness, and their continued concern. I am L

TBP via robotic surgery on 10/19/18 at NYPresbyterian/Weill Cornell Campus NY, NY Eugene Shostak, Interventional Pulmonologist and Benjamin Lee, Thoracic Surgeon Until I was in my mid 40’s, I felt I was relatively healthy, working full time as an RN and generally not paying that close attention to my own health as I was busy living life, working, raising a family. As a child I frequently had ear infections, sinus infections and colds that often became bronchitis, but I was ne

Lynk was born 12 weeks premature and spent 2 months in the hospital. One day after Lynk was discharged home, he turned blue and appeared to not be breathing. Immediately, Lynk's family called 911 and he was transported to the hospital. After evaluating Lynk, doctors told his parents they didn't see anything wrong and they were discharged. As the weeks went by, Lynk continued to turn blue up to eight times a week. Each time this happened, Lynk's parents were told there was not

Landrie was born full term with no major health complications. Her parents noticed noisy breathing when she was about a month old along with reflux symptoms, and she was prescribed reflux medicine. The reflux got better but the noisy breathing continued. One day, Landrie (almost 4 months old) was in her mother’s arms and when her noisy breathing progressed, she had difficulty breathing and turned blue. She then stopped breathing and required CPR. Landrie was diagnosed with La

Isabella has suffered respiratory issues since she was a toddler. She was frequently diagnosed with croup and upper respiratory infections for the first 3 years of her life. She got her tonsils and adenoids removed and tubes placed in her ears, but she still had trouble breathing and noisy stridor. Once she turned 5, we were told that it can no longer be diagnosed as croup after the age of 5, so she has "asthma." At 9 years old, the “asthma” worsened. Doctors considered her t

Nancy’s story began in January 2010, when she came down with what appeared to be a cold and a “deep cough”. She was prescribed various medications, but the symptoms did not respond. As a result, Nancy was hospitalized for ten days. During her hospitalization, Nancy was diagnosed with asthmatic bronchitis. After ten days, Nancy was discharged home, though she did not feel her symptoms improved. Over the next few months, Nancy developed reoccurring respiratory infections out of

Debbie's story begins with years of asthma and bronchial infections that never quite cleared up. This left Debbie to experience chronic wheezing, coughing and overall feeling breathless. In January of 2015, her symptoms continued to progress and her feeling of lethargy got much worse. Debbie found everyday activities became increasingly difficult to do. Her ability to breathe felt like she was breathing through a straw. Climbing one flight of stairs became exhausting. Debbie’

Angela McEvoy, is 41 years old and lives in a small village near Blackpool in Lancashire with her husband and dog. She is a patient of Dr Robert Niven’s at the North West Lung Centre, Wythenshawe Hospital in Manchester. My TBM Story I had always struggled on and off with my health particularly my chest. As a child I was always chesty, barking coughs and exercise induced asthma. Then aged 23 I contracted a virus which de-stabilised my asthma. I would have sudden exacerbations,