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News and Events

CureTBM is proud to help sponsor the Virtual Clinic Program at Beth Israel Deaconess Medical Center. Through this program, patients as well as providers will be able to benefit from the expertise of the BIDMC.  Patients will have an online video conference with the top experts at the TBM program to help evaluate the patient as well as receive recommendations for medical management and surgical readiness    The program will be running by Fall of 2018.

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Coming May 2019 - Symposium on EA/Airway malacia. Parents are encouraged to attend and participate as well as share their personal stories .   Further details to follow. 

Ways you can Help

Giving Breaths to the Breathless

 

On September 18th, 2018 Jennifer Champy along with TBM patient Linda Sconyers presented Dr. Adnan Majid a Check to help further research for patients who are not typical surgical candidates.

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  • Facebook birthday fundraisers

  • Host your own fundraiser. (Let us know so we can help!)

  • Ask your employer to enroll your company in a "Charity Company Match Program

  • CrowdSource fundraising

  • Shop our store! Our merchandise makes GREAT gifts!