Together, we can give breaths to the breathless
CureTBM, founded by Jennifer Champy, is devoted to raising awareness about TracheoBronchoMalacia in pediatric and adult patients.
The team at CureTBM strives to advocate, educate and provide research funding to help find a cure for TBM.
Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition
What is Tracheobronchomalacia?
Tracheobronchomalacia, or TBM for short, is a softening (malacia) of the trachea (wind pipe) and bronchi (passageways into the lungs). When these areas are weak they often collapse, making the airway very narrow and causie breathing difficulties for patients. There are two forms of TBM, primary tracheobronchomalacia, which is seen in pediatric patients, and secondary tracheobronchomalacia which is seen in adults.
Symptoms of TBM include persistent cough, inability to clear secretions, difficulty breathing (specifically exhaling, or breathing out), chronic infections, "barking" cough and low oxygen levels. TBM has previously been thought to be a rare medical condition, when in reality, the condition is under/misdiagnosed.
CureTBM works with Beth Israel Deaconess Medical Center and Boston Children's Hospital to assist patients in being evaluated and diagnosed. Both of these facilities are located in Boston, Massachusetts.
Once diagnosed with TBM, treatment options vary and are specific to the patient. Options may include respiratory therapy, medications, and/or surgical intervention. For specific information please select one of the links below to find out more about TBM and how it may relate to you, or your loved one specifically.
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TOGETHER WE WILL SHAPE THE FUTURE.
CureTBM C/O Jennifer Champy
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Chapin, SC 29036
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News & Events
CureTBM is pleased to announce we have granted a $30,000 grant to the Chest Disease Center at Beth Israel Deaconess Medical Center (BIDMC) in Boston, Massachusetts.
Dr. Majid and Dr. Gangadharan will use this grant will to help fund an exciting stent trial that will help to advance the treatments of Tracheobronchomalacia.
In tracheobronchomalacia (TBM) and other disorders, weakened airway walls lead to expiratory central airway collapse (ECAC) and can cause symptoms of cough, dyspnea, retained secretions, and recurrent pulmonary infections. Diagnosis of severe ECAC is based on the presence of >90% expiratory airway collapse on dynamic computed tomography (CT) and/or bronchoscopy. To find out more, click HERE
How do we treat Tracheomalacia?
Effects of Posterior Tracheoplexy
Dr. Russell Jennings of Boston Children' Hospital explains the various treatment options for Tracheomalacia in pediatric patients. Watch this short video using model demonstrations to better understand the various types of airway collapse: posterior intrusion, anterior collapse and vasular Compression. For more information on treatment options,contact Boston Children's Hospital (617) 355-3038.